Hello all sweet readers. Michael and I want to thank you all for your unbelievable sweet comments, emails, texts and posts in support of our Gavin. Our Gavin is home for 3 days now. He has a long road ahead and quite possibly more bumps to come but he is in good spirits and such a level headed young man, so it has not proven to be too difficult for him to handle.
The short version is he had contracted the common teenage virus: EBV aka Mono. The large majority never know they get mono or are only mildly affected. Needless to say Gavin got hit by the Mack truck of Mono viruses.
While in hospital (CHOP) they discovered some other concerns; strong possiblity of Crohns disease and a remote chance of a cancer (not blood). This harsh case of Mono may have turned out to be a blessing in disguise.
Gavins White blood cells are very high and his platelets are pretty low. His Spleen is still enlarged (common for harsh virus cases).
Blood results today revealed his platelets have barely risen in numbers so more retesting on Monday.
He is undoubtedly better compared to those super scary first days. Until his body recovers from this Mono the other specialists cannot do further testing to deny or confirm the other concerns.
So, it will be a few months before we have more answers. Gavin will finish his schooling at home and make up exams hopefully this summer.
We have been told it can be up to 6 months just to recover from the Mononucleosis. Who knew? Not me!
Surprisingly this is seemingly ok with all of us. I think because we believe all will be ok. So for now we are going about each day as normal. The only difference is helping care for Gavin which I could do for the rest of life x a gazillion years. He is our love (Austin too ; ) and we will make it all work so he has everything he needs.
I know a number of you have children with disorders, diseases and some of them had to pay the ultimate price. My heart breaks for each and everyone of. Please know that our thoughts and prayers are with you, Always.
Much love & joy-
Dani, Mike, Gavin & Austin
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